EBMT NG Research Sub Committee Update
We are also happy to introduce a newly elected member, his name is Patrick Crombez. He has a Master in science of nursing and is the Head Nurse of the haematology and stem cell transplantation ward at the Jules Bordet Institute in Brussels. For many years he has been involved in clinical research and his special interests are evidence-based symptom management, gero-oncology, and long term post transplant quality of life.
At present, our group the group is working on several interesting project. In 2007, an educational DVD on GvHD was produced by the EBMT-NG, which was distributed to all EBMT nurse members and to Principal Investigators at EBMT centres without a listed nurse. To elicit the satisfaction and utility of this education resource a web-based questionnaire has been sent by e-mail to all EBMT-NG members. The results from the survey will be presented at the EBMT conference in Göteborg. As part of the 25th anniversary of the EBMT-NG, we will also present an overview of the nursing activity at the EBMT-conferences during past years.
The results from the Research Priority Survey performed in 2007 were presented at the EBMT-conference in Florence 2008. Patient information was found by nurses to be a highly relevant research area in relation to care of patients undergoing stem cell transplantation. The RSC also finds this topic very important, and in particular the written information. As a complement to verbal communication, the written information may for example involve patients in their condition and their treatment, help patients remember - the written information can also be shared with family and friends. At future RSC meetings, we will make plans on how to proceed working with this topic. Examples of questions that have been addressed so far within our group are: What written information is available for patients undergoing stem cell transplantation? Is the available written information comprehensive? And, is the information understandable to patients, family and friends?
We welcome you to discuss these projects with us, and also share other questions you might have, our email addresses can be found at the following website:
Being a nurse, working in haematology and stem-cell transplantation, your contributions are not only appreciated, they are vital to the continued improvement of the quality of patient care!